Imagine navigating a world you’re unable to see – sounds scary, doesn’t it? Tune in as we unravel the mysteries and challenges of Optic Nerve Hypoplasia (ONH), the leading cause of childhood blindness. Our special guests, Joanna and her remarkable 13-year-old daughter, Chrissa, take us on their incredible journey of living with ONH. They reveal the power of community support through a Facebook group that’s grown from 500 to a whopping 5,500 members.
Chrissa isn’t just any teenager – she’s an inspiring young individual battling ONH (Optic Nerve Hypoplasia). As a Braille learner and a fervent advocate for the right to adequate accommodations, she’s breaking barriers and achieving her milestones.
But, that’s not all. We dive into the crucial role of early intervention and second opinions in managing ONH. As Joanna and Chrissa remind us, it’s not an easy journey – it’s filled issues and countless hurdles, but the right care, community support, and self-advocacy can make all the difference. Join us as we celebrate Chrissa’s accomplishments and dreams, serving as a powerful reminder that we are all champions in our own unique stories.