ONH Blog

Imagine navigating a world you’re unable to see – sounds scary, doesn’t it? Tune in as we unravel the mysteries and challenges of Optic Nerve

I found out I was pregnant on August 29, 2009. I was so nervous and so excited because all of my life all I ever

Updated: Dec 12, 2023 IEP meetings are usually held once a year. You can amend an IEP at anytime to address new concerns/conflicts, add or remove

I’ll be posting examples of letters and information sheets for our members to read as examples. A friendly reminder to Please NOT copy these personal

Some days I wish that I were a neurologist. I never grew up thinking,  “I can’t wait to go to medical school to become a

Updated: Aug 15, 2023 ONH and the impact of Covid19 April 2020 is when the Washington school officials shut down all public school districts in our

Updated: Sep 4, 2023 “I See so much confusion between the terms ONH, SOD and De Morsier Syndrome so I wanted to post this from Children’s

A common myth we hear far too often is that you must have an MRI (Magnetic Resonance Imaging) of the brain in order to get

Getting a medical diagnosis of any kind can come as quite of a shock to most. Getting a medical diagnosis as a parent to a

Optic Nerve Hypoplasia: A Journey, Advice, and Instructional Strategies If your child has been diagnosed with Optic Nerve Hypoplasia (ONH), you are not alone! According

Updated: Aug 3, 2023 I’ve been working in early childhood education since the year 2001. I was a junior in high school when I got my

I have been struggling with how to start this blog. The last time I tried to start a website and blog, I was much earlier

Years ago I had seriously considered starting my own blog, I just had no idea how to do it or who would read it. I

Tomorrow, April 14th is the official day we celebrate those affected with ONH/SOD. Like most awareness days, we hope to educate, spread awareness about this

One of the toughest yet most rewarding jobs in life is being a parent. In the case where parents are parenting a child with special