Welcome Blog

Years ago I had seriously considered starting my own blog, I just had no idea how to do it or who would read it. I think the idea came to me in 2012 which would put Chrissa at age 2 or 2 1/2 years old. It was around that time when I finally felt like […]

ONH Awareness Day

Tomorrow, April 14th is the official day we celebrate those affected with ONH/SOD. Like most awareness days, we hope to educate, spread awareness about this condition and encourage acceptance of ONH to anyone willing to listen & learn! If you feel comfortable with it and want to, please tell just one person you know a […]