The Beginning of a Journey

I have been struggling with how to start this blog. The last time I tried to start a website and blog, I was much earlier on in this journey in the world of ONH and SOD. However, today I had a friend share with me that she received some scary news at her ultrasound, and […]

Welcome Blog

Years ago I had seriously considered starting my own blog, I just had no idea how to do it or who would read it. I think the idea came to me in 2012 which would put Chrissa at age 2 or 2 1/2 years old. It was around that time when I finally felt like […]

ONH Awareness Day

Tomorrow, April 14th is the official day we celebrate those affected with ONH/SOD. Like most awareness days, we hope to educate, spread awareness about this condition and encourage acceptance of ONH to anyone willing to listen & learn! If you feel comfortable with it and want to, please tell just one person you know a […]

Parenting and Supporting a Child in Special Education

One of the toughest yet most rewarding jobs in life is being a parent. In the case where parents are parenting a child with special needs, the lessons learned and bonds made can be even deeper and more lasting. Raising a special needs child comes with unique challenges and concerns, so it’s important for parents […]